Understanding Grief Following Stillbirth

This study is being carried out by Helen Crispus Jones, Trainee Clinical Psychologist, as part of a doctoral degree in Clinical Psychology. The study is being supervised by Dr Antje Horsch and Dr Kirstie McKenzie-McHarg. Before you decide whether or not to take part in the study, it is important for you to understand why the research is being done and what it would involve for you.  Please take time to read the following information carefully and discuss it with others if you wish. If you have any questions or if anything is not clear please contact Helen Crispus Jones, Dr Antje Horsch or Dr Kirstie McKenzie-McHarg using the contact details below.

What is the purpose of the study?

Stillbirth is a difficult experience for women and their partners. We believe that some women experience more difficulties with grieving after the loss of their baby than others. Research has suggested that for some bereaved people, grief lasts much longer, and is more distressing, than for others. We call this complicated grief. There is currently no research looking at complicated grief after a stillbirth, or about the different factors that may lead to an increased risk of developing complicated grief after experiencing a stillbirth.

This study aims to look at the factors that may lead to an increased risk of developing complicated grief, or having long-term difficulties after a stillbirth. We think it is important to ask women who have experienced a stillbirth about their grief, so that we can improve our understanding of grief following a stillbirth, and improve the help and support that is offered.

Who can take part in the study?

Women who have experienced a stillbirth at 24 weeks of pregnancy or later, up to 2 years ago, can take part in the study.

Women who cannot speak fluent English will not be able to participate in the study (because we are not able to interpret the questionnaires).

How can I take part?

If you decide to participate, you have a choice of how to do so. Here are the 4 different options:

1. You could complete the questionnaires online at a convenient time by clicking here.

2. You could ask us to send you the questionnaires for you to complete and send back by post. To do this, download the contact details sheet here and email it to helen.crispusjones@hmc.ox.ac.uk, or post it to the address on the sheet.

3. You could ask us to contact you to arrange a telephone interview. This would involve someone talking you through the questionnaires in the study. To do this, download the contact details sheet here and email it to helen.crispusjones@hmc.ox.ac.uk, or post it to the address on the sheet.

4. You could ask us to contact you to arrange a face-to-face interview. This would involve someone meeting with you to go through the questionnaires in the study. To do this, download the contact details sheet here and email it to helen.crispusjones@hmc.ox.ac.uk, or post it to the address on the sheet. Unfortunately, this option is only available within a limited area (i.e. north as far as Warwick; east as far as Northampton; south as far as Swindon and Reading, and west as far as Bristol).

If you are interested in taking part, please read the full information sheet about the study here.

Who is doing this study?

Helen Crispus Jones, Trainee Clinical Psychologist, is carrying out this study as part of a doctoral degree in Clinical Psychology. The project is supervised by Dr Antje Horsch, Chartered Clinical Psychologist and Dr Kirstie McKenzie-McHarg, Chartered Clinical Psychologist from the Oxford Perinatal Psychology Research Group. 

Contact details

Main researcher

Helen Crispus Jones

Trainee Clinical Psychologist

Oxford Doctoral Course in Clinical Psychology

Isis Education Centre

Warneford Hospital

Oxford, OX3 7JX

Email: helen.crispusjones@hmc.ox.ac.uk

Tel: 01865 226365 (if no one is available to answer when you call, please leave a message for Helen and she will return your call as soon as possible)

 

Supervisory researchers

Dr Antje Horsch

Department of Child and Adolescent Psychiatry,

University of Lausanne,

25 A, Rue du Bugnon,

1011 Lausanne,

Switzerland

Email: Antje.Horsch@chuv.ch

 

Dr Kirstie McKenzie-Mcharg

Department of Clinical Health Psychology,

Warwick Hospital,

Lakin Road,

Warwick,

CV34 5BW

Email: kirstie.mckenzie-mcharg@swft.nhs.uk

 

Click here to complete the study online.

Click here to download a copy of the information sheet about the study.

Click here to download a copy of the contact details sheet if you wish to be contacted about joining the study.